• Fibro warriors blog

Explaining the reality of Fibromyalgia

It’s a real challenge trying to get people to understand Fibromyalgia because it’s such as complicated illness. For one, most people don't even know what Fibromyalgia is. Balance, brain fog and fatigue Sometimes you may struggle walking straight or sometimes walk into things or trip on air, But to other people you could just look clumsy or even drunk. Forgetting things or not being able to remember things is also frustrating, or forgetting what you are saying half way through a conversation, is incredibly difficult and embarrassing. Because sometimes we can look healthy on the outside, one of the greatest challenges we have is explaining to others how a person who looks so well can actually feel ill or be in pain. Living life as a spoonie The term 'spoonie' relates to all people who suffer with a chronic illness. Essentially it's an analogy of daily life. A person has a handful of spoons every day - sometimes they will have more, sometimes they will have less, but they represent that person’s daily energy reserves. Every activity, no matter how thoughtless and automatic, depletes from this energy supply. Getting out of bed, showering, getting dressed, eating, and any number of mundane tasks threaten to deplete energy at any given time. Some days are better than others but sometimes you run out of 'spoons'. Never judge a book by its cover The more we raise awareness, the easier it will be for people like us living with an invisible illness. People need to remember that sometimes there is so much more going on underneath the surface. As we were all taught, you should never judge a book by its cover.

3 views0 comments

Recent Posts

See All

Do you feel like a fibro prisoner?

Do you feel like a fibro prisoner? Attempting to explain what it’s like to live with a disease like Fibromyalgia is not always easy. Finding the right description for an experience that few others


By Phone (message phone)07974074286

  • w-facebook

And Lets Discover

Our Supporters


Bristol Hippodrome


Waterside Holiday Park & SPA


This web site is for informational purposes only and should not be used as a substitute for the medical advice or services of your health care providers.

Every effort has been made to make this web page as accurate as possible. This information is not intended for self-diagnosis, treatment, or the justification for accepting or declining any medical treatment for any health problems or diseases. Any application of the information presented in these web pages is at the reader's own discretion. Therefore, any individual who has a specific health problem should consult his or her health care provider . No-one associated with the Fibromyalgia Research UK Charity can be held liable for any use or misuse relating to the information provided. This information is provided to the general public and it is the sole responsibility of persons using this information to consult with his or her health care provider. The information contained on this web site is not intended, and should not be construed, as professional medical advice or recommendations. No information provided should be construed as the practice of medicine or an offer of medical advice.

This web-site is for information purposes only.