I think the main reason to donate to us, is because there is just not enough information on Fibromyalgia currently out there. I was diagnosed a couple of years ago, I had never even heard of Fibromyalgia, yet there sat a Doctor telling me that was my diagnosis, the next thing I know I was handed medication and a leaflet. I came home feeling happy that at least I finally had a diagnosis for all the pain, fatigue and other symptoms I had been feeling. I told some of my Family members only for one of them to say ‘oh that’s just that fake disease that Doctors use when they don’t have a clue what’s really wrong with you’, I immediately felt deflated and back to square one.

I soon realised that was a common misconception that people believed and soon stopped telling people that was my condition. I should never have felt like that and I never want others to feel like that either, we need to raise awareness for exactly how serious this condition is. More information should be made available to all stages of Fibromyalgia sufferers.

The idea that some people have about Fibromyalgia could it be generated from misdiagnosis from Doctors? Could it be because there is currently no definitive test to confirm the diagnosis of Fibromyalgia?

It’s time for a change, my vision is to investigate and fund evolutionary clinical trials to enable sufferers to be tested and have a confirmed diagnosis, research why so many serious conditions are related to Fibromyalgia, research preventative medicines and possibly reduce the amount of confirmed Fibromyalgia sufferers. Produce medication that treat most of the symptoms in one pill.

This charity can do so much but it can do so little without support or donations from people like you.